What chronic conditions do you live with?
Fibromyalgia, Psoriatic Arthritis, Psoriasis, Botched hysterectomy
What’s is the most common misunderstanding about you or your condition?
That pain is not the only debilitating symptom
What’s one thing you wish you knew when you got diagnosed?
I wish there was one thing. What would have helped me was guidance to resources where I could learn more about each illness and better understand what was going on with my body.
What’s the most ridiculous thing a doctor has ever said to you?
The rudest thing a doctor said when addressing my multiple pain sources was “It sucks to be you”!
The craziest thing said occurred while going over MRI results for abdominal pain. My surgeon said, and I quote “Good news is that your appendix looks great!” I replied that we had a problem since my appendix had been removed three years prior! He asked if I was sure that it was an appendectomy and continued to argue with me. At a later date and after surgery, he confirmed that I was correct and did not have an appendix.
What has given you inspiration?
Walt Disney inspires everything I do. Whether it be in my personal, professional, or chronic life, his legacy reminds me that nothing stays the same. We will never grow or prosper if we do not adapt and make changes.
Tell us a funny story about when nothing went to plan…but the story is one good one to tell!
Brain fog loves to make me look like a fool. One morning my husband asked me what I wanted for breakfast and I blurted out a bunch of random words. I could hear the nonsense coming out of my mouth and chuckled. My husband said, well those were words.
Another time while conversing with a group of people, my mind went blank and I couldn’t think of a simple word. Our simple conversation turned into a 30 minute game of charades!
To what do you attribute your ” daily will?”
My daily will or motivation is that I am stubborn. While stubbornness isn’t always thought of as a good trait to have, it has worked in my favor since becoming chronically ill. My motto is that if there is a will, there is a way. Just because I can’t do something like I used to does not mean that I cannot find another way to do it.
What alternative treatments or therapies have most helped you? Any that surprised you by how effective they were?
Cannabis, CBD, PEMF therapy, and herbal supplements have been the most effective at reducing my chronic pain and symptoms. After almost a decade of failing to achieve any relief from pharmaceutical medications, I was open to trying anything. Yet, I was hesitant because I could not understand why my doctor had not shared any of those alternative treatments with me.
What was most challenging when you were first diagnosed?
The most challenging thing to deal with after each diagnosis was EVERYTHING! I wasn’t given information about any of my chronic illnesses. Side effects from medications were not worth the little relief I experienced if any at all. And when I finally became brave enough to share how my chronic illnesses were affecting me emotionally, doctors blamed my pain on depression instead of the other way around.
What does your daily routine look like?
I spend an hour in bed scrolling through messages each morning. This gives my body time to adjust to being awake. From that point, I follow my body’s lead. My days are typically spent writing and working on my blog. From the moment I wake up and until I go to bed, I assess my pain points. Then address as needed throughout the day. I go to bed and wake up at or near the same time every day. This helps me stay on schedule after a flare.
How has “being disabled” changed you as a person for the better?
Becoming disabled has taught me two things. The first being that you cannot judge a person’s pain or illness by how they look. The second is that most average people expect our only goal in life to be like them. It is very hard for them to accept that one can live well or be happy with a chronic illness.
What is the one thing you are MOST proud of yourself for achieving despite your condition?
I am most proud of my blog and freelance writing. After chronic illness entered my life, it made it impossible for me to return to my career in accounting. My blog and articles help others and give me purpose.
What are your favorite life hacks for getting things accomplished day to day… while overcoming the fatigue, brain fog and all the symptoms?
I would be lost without notepads! I keep them everywhere, in my purse, on the refrigerator, next to my bed, and even in the bathroom! Calendars, planners, and reminders set on my phone help keep me from forgetting what needs to be done.
Do you have a slogan that you want to leave readers with?
Never give up! Learn from others and then find what works for you!
How can warriors connect with you?