Chronic Voices: The Endo Monologues

Mayv Editors
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Mayv Editors

What chronic conditions do you live with?

Endometriosis, Adenomyosis, Vaginismus, Vulvodynia, Hypothyroidism and IBS.

What’s is the most common misunderstanding about you or your condition?

That having a gynecological condition means you just have a bad period.

What’s one thing you wish you knew when you got diagnosed?

That it’s okay to ask for a second opinion when it comes to your health and that what a doctor says isn’t always correct. My advice to someone who has been newly diagnosed is that they’re not alone and that there are always people who understand that you can talk to.

What’s the most ridiculous thing a doctor has ever said to you?

That my period problems were a result of me being promiscuous despite me not mentioning my sexual activities and telling the him that I currently wasn’t sexually active.

What has given you inspiration?

Individuals with endometriosis who bravely share their journey on a daily basis, warts and all.

Tell us a funny story about when nothing went to plan…but the story is one good one to tell!

I had a horrific flare up at work and had to take myself into the office to lie down in the fetal position during my break. A male colleague came in, did a double take at me on the floor and when I told him my uterus was being evil, he very gently laid a blanket on me and then slowly backed out the room as he didn’t know how else to respond.

To what do you attribute your ” daily will?”

In all sincerity I love my job and knowing that I have people who rely on me is the main thing that gets me out of bed. That and I know that if I do stay in bed, I’m probably going to end up in more pain!

What alternative treatments or therapies have most helped you? Any that surprised you by how effective they were?

One of my closest friends is a Reiki practitioner and I am always surprised how much better I feel after having a session with her!

However, the biggest help for me has been CBD. As a result of taking it daily I no longer rely on over the counter painkillers unless I’m having a particularly nasty flare.

What was most challenging when you were first diagnosed?

I found it really challenging to try and explain what I was going through to other people, even with an official diagnosis I found that a lot of people didn’t understand what my condition meant and how it effected me.

What does your daily routine look like?

I’m definitely not a morning person so I try and wake up as late as a I possibly can! Then I go about getting ready and heading to work. My work day is pretty full on as I work with teenagers and the length of my work day can vary depending on what needs to be done and what my energy levels are like.

If I’m having a good pain day, I’ll try and do a workout as soon as I get home but otherwise I will spend the afternoon/evening reading, cooking or writing. The rest of my evening is usually spend resting and watching rubbish TV before getting ready for the next day and climbing into bed to read for another hour or so.

How has “being disabled” changed you as a person for the better?

It’s allowed me to become confident in advocating for my own health as well as developing the skills to help individuals do the same for themselves. My diagnosis has allowed me to realize it’s okay to put myself first and to not feel guilty about that.

What is the one thing you are MOST proud of yourself for achieving despite your condition?

Graduating at the top of my class during university and in my post-graduate education.

What are your favorite life hacks for getting things accomplished day to day… while overcoming the fatigue, brain fog and all the symptoms?

I write everything down and have a constant to-do list. I try and list things in order of priority as then it’s easier to know where your energy needs to be focused. It’s also a good idea to complete any tasks that take under five minutes as soon as you receive them!

Do you have a slogan that you want to leave readers with?

Remember that nobody knows your body as well as you do.

How can patients find you on social media?


This article is for informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek medical advice from your physician or health provider for your specific needs.

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